This page from Great Ormond Street Hospital (GOSH) explains about junctional epidermolysis bullosa with pyloric atresia and how it can be managed. It also contains suggestions for making everyday life more comfortable and contact details for a support organisation.
Colonic manometry is a test to measure how well the muscles and nerves in the colon (large intestine) work. These muscles squeeze rhythmically to push faeces (poo) through to the rectum and out of the body.
A groundbreaking research programme aims to beat childhood brain tumours. The £4 million study, co-funded by grants from Great Ormond Street Hospital Children’s Charity, the Brain Tumour Charity and Children with Cancer UK, will look at new ways to treat some of the deadliest brain tumours affecting children.
Anorectal manometry is a test to measure how well the muscles and nerves in the rectum and anus in your child’s bottom are working. Your child needs this test so that the doctors can check how well the muscles and nerves are working to push out faeces (poo).
The purpose of this guideline is to provide guidance on the care and use of long term Central Venous Access Devices (CVAD) including advice on dealing with any problems encountered. For the purpose of this guideline, devices that are required to remain insitu greater than a month will be considered a long term CVAD.
Note: While this guideline refers to the 'child' throughout, all activities are applicable to young people
A video capsule endoscopy is a test to look at the inside small intestine (also known as the small bowel) for to identify and diagnose any abnormalities. This page from Great Ormond Street Hospital (GOSH) explains about the Video Capsule Endoscopy (VCE) procedure, what it involves and what to expect when your child comes to GOSH for the test.
This guideline covers the recognition, management and prevention of infiltration and extravasation injury.
NOTE: We review our guidelines regularly and this guideline is now past its review date. The content of the guideline below may not reflect the most recent evidence based practice. Please use with caution.