There are many different ways of getting involved with research at GOSH or the UCL Institute of Child Health. You can be a research participant in a study, or you can get actively involved and help advise on research studies.
If you are a parent of a child receiving care at GOSH, or you are a patient yourself and are interested in what studies are available to you to take part in, ask your clinical team about research taking place. They will know if there are any studies going on in that area/disease group that would be available to you or your child to take part in.
Omar, aged 13, has Haemophilia A and attends the Great Ormond Street Hospital (GOSH) Haemophilia Comprehensive Care Centre. Here Omar tells us a bit more about his condition and the research he has taken part in at GOSH, which was led by Dr Kate Khair, Nurse Consultant and Melanie Bladen, Specialist Physiotherapist.
Taking part in the 100,000 Genomes pilot project
Georgia, aged four, is under the care of Great Ormond Street Hospital (GOSH) clinical geneticists and attended GOSH to take part in the pilot study for the 100,000 Genomes Project. Here her mum, Amanda, tells us about taking part in a research study.
Clinical trial for XLH
Ten-year-old Lottie and her brother Ashley, nine, began coming to Great Ormond Street Hospital (GOSH) in 2014 to see Dr William Van't Hoff. They were keen to hear about a new clinical trial for children like them with X-linked hypophosphatemia (XLH) rickets – a genetic condition which prevents normal levels of phosphate being maintained in the blood. XLH can cause pain, bending of the bones and poor growth.
Sanfilippo syndrome – metabolic clinical trial
Stanley, aged two, has Sanfilippo syndrome and attends Great Ormond Street Hospital (GOSH) with his family to take part in a clinical trial at the Somers Clinical Research Facility (CRF). The trial is led by Dr Cleary and supported by CRF research nurses.
Protein allergies and Edie's clinical trial
Edie, aged seven months, attends the Somers Clinical Research Facility (CRF) at Great Ormond Street Hospital (GOSH) with her mum Jess. She is taking part in a clinical trial looking at the use of pre and probiotics in infant formula milk for babies with allergies.
Vasculitis clinical trial
Katie, now 15, started coming to Great Ormond Street Hospital (GOSH) after being diagnosed with vasculitis and is now taking part in a clinical trial. Katie tells us about her condition and why she chose to take part in research.