High quality research depends on listening to the voices of children and young people, as well as their families and carers, taking account of their experiences, priorities and perspectives.
GOSH is committed to the Department of Health’s national strategy which puts patients at the centre of all NHS-related activity.
Children, families and members of the public can be involved:
- As patients/participants voluntarily taking part in clinical or other well designed studies.
- As patients and public members working with researcher professionals and clinicians and getting actively involved in the different stages of research.
There are many different ways of getting involved with research at GOSH or the UCL Institute of Child Health. You can be a research participant in a study, or you can get involved in the background design and implementation of a research project.
If you are a parent of a child receiving care at GOSH, or you are a patient yourself and are interested in what studies are available to you to take part in, please contact your consultant in the first instance. She or he will know if there are any studies going on in that area/disease group that would be available to you or your child to take part in.
Getting involved and engaged with research
There are many different ways you can get involved in helping to advise about research studies going on at GOSH or the UCL Institute of Child Health. For example, you can help advise on the overall research design, helping to develop the research project, or assisting with getting the results of a study out to the general public. The following websites may be useful in identifying opportunities open to you:
- INVOLVE provide information and resources for people wanting to help develop research.
- Involving London promotes opportunities from across London where you can get involved and details of training and other events.
- People in Research allow you to search for further involvement opportunities relating to specific conditions.
If you are interested in becoming involved in one of our Patient and Public Involvement or Engagement activities, please contact our PPI/E lead for research, Dr Erin Walker, for more details.
Coming to the Somers Clinical Research Facility
The Somers Clinical Research Facility (CRF) is a purpose built day-care facility for children and young people taking part in clinical research studies. It provides a welcoming, safe and appropriate environment for children, young people and their families. The facility has a dedicated team of Children’s Research Nurses that care for children and their families when they are taking part in a clinical study.
Hear from other parents, children and young people about what it it like to be involved in research at Great Ormond Street Hospital and their experiences visiting the Somers Clinical Research Facility.
When Emma’s son Sam was three he was diagnosed with Duchenne muscular dystrophy (DMD), a life-limiting condition which causes the breakdown and loss of muscle cells. Here, Emma shares her experience
of having a child with DMD, and what it’s like to take part in a clinical trial at Great Ormond Street Hospital (GOSH).
Joe was diagnosed with juvenile idiopathic arthritis when he was six years old. At the time he was so ill he couldn't get out of bed. Now Joe's life has been transformed by a clinical trial at Great Ormond Street hospital. Here Joe tells us his story.
Joshua has Duchenne muscular dystrophy (DMD), a genetic condition which causes muscle weakness due to the breakdown and loss of muscle cells. Joshua and his mum, Zeena, tell us about their experience
taking part in a clinical trial at Great Ormond Street Hospital.