Research and publications from the Clinical Ethics Service

At present there are no grants the Clinical Ethics Service are aware of that specifically fund research into paediatric ethical issues in the UK.If any parties would like to collaborate in any areas of research please contact Joe Brierley (brierj@gosh.nhs.uk) in the first instance.

Developing guidance for pregnancy testing of adolescents participating in research: ethical, legal and practical considerations.

Larcher V, Brierley J.Arch Dis Child. 2016 Apr 22. pii: archdischild-2016-310725. doi: 10.1136/archdischild-2016-310725. [Epub ahead of print] Review.

Premortem interventions in dying children to optimise organ donation: an ethical analysis.

Brierley J, Shaw D. J Med Ethics. 2016 Mar 30. pii: medethics-2015-103098. doi: 10.1136/medethics-2015-103098. [Epub ahead of print]

Adolescent autonomy revisited: clinicians need clearer guidance.

Brierley J, Larcher V.J Med Ethics. 2016 Mar 21. pii: medethics-2014-102564. doi: 10.1136/medethics-2014-102564. [Epub ahead of print]

Training paediatric healthcare staff in recognising, understanding and managing conflict with patients and families: findings from a survey on immediate and 6-month impact.

Arch Dis Child. 2016 Apr 20. pii: archdischild-2016-310737. doi: 10.1136/archdischild-2016-310737gical or other procedures. Forbat L, Simons J, Sayer C, Davies M, Barclay S

Conflict in a paediatric hospital: a prospective mixed-method study.

Arch Dis Child. 2016 Jan;101(1):23-7. doi: 10.1136/archdischild-2015-308814. Epub 2015 Nov 9. Forbat L, Sayer C, McNamee P, Menson E, Barclay S.

Elective ventilation to facilitate organ donation in infants with anencephaly: perinatal professionals' views and an ethical analysis.

Jivraj A, Scales A, Brierley J.Acta Paediatr. 2016 May;105(5):494-8. doi: 10.1111/apa.13281. Epub 2016 Jan 8.

Decision making in long-term ventilation for children.

Fine-Goulden MR, Ray S, Brierley J.Lancet Respir Med. 2015 Oct;3(10):745-6. doi: 10.1016/S2213-2600(15)00377-X. No abstract available.

UK court accepts neurological determination of death.

Brierley J.Lancet. 2015 Jun 6;385(9984):2254. doi: 10.1016/S0140-6736(15)61064-9. No abstract available.

Pediatric Deceased Donation-A Report of the Transplantation Society Meeting in Geneva.

Martin DE, Nakagawa TA, Siebelink MJ, Bramstedt KA, Brierley J, Dobbels F, Rodrigue JR, Sarwal M, Shapiro R, Dominguez-Gil B, Danovitch G, Sweet SC, Trompeter RS, Moazam F, Bos MA, Delmonico FL; Transplantation Society. Transplantation. 2015 Jul;99(7):1403-9.

Conflict escalation in paediatric services: findings from a qualitative study. 

Arch Dis Child. 2015 Aug;100(8):769-73. doi: 10.1136/archdischild-2014-307780. Epub 2015 May 4. Forbat L, Teuten B, Barclay S.

Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice.

Larcher V, Craig F, Bhogal K, Wilkinson D, Brierley J; Royal College of Paediatrics and Child Health. Arch Dis Child. 2015 May;100 Suppl 2:s3-23. doi: 10.1136/archdischild-2014-306666.

Clinical trials of contraceptive agents in those under 16 years of age: are they necessary, ethical or legal?

Brierley J, Larcher V. Arch Dis Child. 2014 Dec;99(12):1070-3. doi: 10.1136/archdischild-2014-306854. Epub 2014 Sep 4. No abstract available.

Fetal alcohol syndrome (FAS) and fetal alcohol spectrum disorder (FASD)-diagnosis and moral policing; an ethical dilemma for paediatricians.

Larcher V, Brierley J. Arch Dis Child. 2014 Nov;99(11):969-70. doi: 10.1136/archdischild-2014-306774. Epub 2014 Jul 8.

Guidance on clinical research involving infants, children and young people: an update for researchers and research ethics committees.

Modi N, Vohra J, Preston J, Elliott C, Van't Hoff W, Coad J, Gibson F, Partridge L, Brierley J, Larcher V, Greenough A; Working Party of the Royal College of Paediatrics and Child Health. Arch Dis Child. 2014 Oct;99(10):887-91. doi: 10.1136/archdischild-2014-306444. Epub 2014 Jun 9.

Ethical considerations in neonatal end-of-life care.

Semin Fetal Neonatal Med. 2013 Apr;18(2):105-10 Larcher V.

Developing guidance for checking pregnancy status in adolescent girls before surgical, radiolo1.

Arch Dis Child. 2012 Oct;97(10):857-60. Larcher V.

Mediation: an approach to intractable disputes between parents and paediatricians.

Arch Dis Child. 2011 Jul;96(7):619-21. Meller S, Barclay S

A nudge in the right direction for organ donation--but is it enough?

BMJ. 2011 Sep 14;343:d5726. Wellesley H.