A new report entitled ‘Experiences of rare diseases: an insight from patients and families’ has been published by Rare Disease UK.
The report looks at the views and experiences of 600 patients and families affected by over 100 different rare conditions, covering a wide range of topics from research to diagnosis, and access to care, information, support and treatment.
Great Ormond Street Hospital treats many patients and families affected by rare diseases each year.
Download a full copy of the report
For further information please contact Hayley Dodman, Great Ormond Street Hospital press office on 0207 239 3126 or email email@example.com
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