Vein of Galen malformation is a very rare neurological condition
involving an abnormal communication between arteries and veins in the
brain. It is treated by specialist teams the key procedure blockage of
the abnormal communication by an interventional radiologist (highly
trained doctors who use catheters to inject a glue.)
It can present as heart failure or hydrocephalus, because the heart has to work so hard pumping blood.
the NHS, funding for this sort of ultra-specialist service is allocated
to a special organisation, the National Commissioning Group. NCG has
identified and funded two centres of excellence, Great Ormond Street
Hospital for Children and colleagues in Glasgow. These two centres
carry out this procedure to a high standard.
Press comments that the service is not available in the UK or that better treatment is available abroad is incorrect.
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