This page from Great Ormond Street Hospital (GOSH) explains about junctional epidermolysis bullosa with pyloric atresia and how it can be managed. It also contains suggestions for making everyday life more comfortable and contact details for a support organisation.
Kaposiform haemangioendothelioma (KHE) is a rare vascular (blood vessel) growth that may involve the skin and/or internal organs. It usually appears at birth or soon afterwards and in the early stages can be confused with other types of birthmark, such as an infantile haemangioma (also known as a haemangioma of infancy). Although it may be referred to as a tumour, it is not cancerous and does not spread to other parts of the body.
Kasabach-Merritt phenomenon (KMP) refers to clotting problems arising as a result of the rare benign (non-cancerous) vascular lesions known as kaposiform haemangioendothelioma (KHE) and tufted angioma.Infantile haemangiomas never lead to KMP. This information sheet provides information about Kasabach-Merritt syndrome, what causes it and how it can be treated. It also explains what to expect when your child comes to Great Ormond Street Hospital (GOSH) for diagnosis and treatment.
Acute kidney failure (renal failure) or acute kidney injury is when your kidneys suddenly stop working properly. This means that they are unable to remove salt, water and waste products from the bloodstream.
A syndrome is a collection of symptoms that often appear together. The symptoms associated with Klippel-Trenaunay syndrome are port wine stains, varicose veins and hypertrophy (extra growth) of one limb.