INSPIRE-CF

Adding to a long list of pioneering initiatives and as a result of the success of our frequent flyer programme, the Great Ormond Street Hospital (GOSH) Cystic Fibrosis (CF) Unit has set up an exciting new exercise. What is it and how might it make a difference? 

In May 2012, the CF Unit was awarded a Great Ormond Street Hospital Children’s Charity grant to fund a three-year research study called INSPIRE-CF. 

This study is evaluating a new model of care for children with CF which incorporates regular exercise sessions. To date, 66 children aged six to 15 have signed up to take part in the study. 

Half (50 per cent) of the children in the study will be allocated to Group 1, the control group, and the others to Group 2, the exercise group. Children in Group 1 will continue to receive their usual programme of specialist CF care while children in Group 2 will, in addition to this, receive a weekly supervised 30 to 60-minute exercise training session. 

All children participating have now had their six-month follow-up testing and we will keep you updated as the study progresses. 

The study is being led by Sean Ledger (Physiotherapist) and Dr Eleanor Main (Senior Lecturer in Children’s Physiotherapy). Dr Paul Aurora is the Consultant supervising the research programme.

If you would like more information on the study you can contact the INSPIRE-CF team on 0207 9052178 or 07500 918480.