Your child’s day case assessment at the Children’s Neuromuscular Centre

This page explains about your child’s day case assessment at the Children’s Neuromuscular Centre and what to expect when your child comes to Great Ormond Street Hospital (GOSH).

You should allow the whole morning for your child’s appointment. You will need to bring a packed lunch and drinks for yourself and anyone else accompanying your child. Alternatively, you might want to buy refreshments on the day from one of the eating facilities at Great Ormond Street Hospital or in the local area.

Please also bring the following:

  • Your child’s favourite toy or comforter
  • His or her bottle or feeding cup if used
  • Spare nappies (if used) and a change of clothes
  • Any medicines that your child uses regularly (including inhalers)
  • A pair of shorts for the physiotherapy and medical examinations

What will happen on the day?

During the morning, your child will be seen by one of the neuromuscular doctors, who will review your child’s current condition. Your child may have some of the following during the morning:

  • Physiotherapy assessment
  • Speech and language therapy assessment – please bring any food, drink or feed that your child would usually have to the appointment.
  • Dietetic assessment
  • X-ray
  • Echocardiogram (ECHO)
  • Electrocardiogram (ECG)
  • Blood tests
  • Lung function tests
  • Nerve functioning test (EMG)
  • Clinical photographs

We try to keep delays to a minimum and appreciate your patience. However, some children we see have very complex medical conditions and it can take a long time for the neuromuscular team to assess them. If there are any delays, we will always do our best to keep you informed.

Questions

Please ask any questions at any point of the day. Detailed medical queries are probably best saved until your see the senior neuromuscular doctor (consultant). If there is anything you wish to discuss without your child being present, please let us know so we can try to arrange it.

How do I make a comment about my child’s treatment?

The Pals Office is in the main reception area opposite the shop. Pals are available Monday to Friday from 9am to 5pm and on Saturdays from 10am to 12.30pm. The Pals staff are able to help you with any concerns that you might have about your child’s care or other difficulties you have while staying at the hospital. Pals can also help you with benefit and financial issues and other problems not immediately related to your child’s health care. Pals are also happy to sit and listen if you feel the need to talk to someone in more general terms about what you and your child are currently going through. Pals operate an ‘open door’ policy so feel free to drop in. Pals are also happy to visit you on the ward if you do not feel able to leave your child. You can contact the Pals staff on 020 7829 7862 or internal extension 7862 or by email at pals@gosh.nhs.uk

If you would like to make a formal complaint, you can write to the Complaints Manager, Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH. More details are available in our leaflet How to make a complaint.

Compiled by: 
The Neuromuscular Service in collaboration with the Child and Family Information Group.
Last review date: 
August 2013
Ref: 
2013F0886

Disclaimer

Please note this is a generic GOSH information sheet. If you have specific questions about how this relates to your child, please ask your doctor. Please note this information may not necessarily reflect treatment at other hospitals.