The Wolfson Neurodisability Service is involved in a broad range of research across all clinics.
Each service holds a database containing information about children seen in the clinic over a number of years, which will ultimately further our knowledge about the management of children with disabilities and their treatment.
Clinical information may be entered into this database, although all data is strictly confidential and will only be used in an anonymous way so children cannot be identified. Any parent is free to opt out if they would prefer their child’s details not to be entered into the database. This will have no impact on their child’s future care or treatment.
There are also a number of other studies in which parents and their children may wish to participate:
Optimum VI project: early development and support of babies and young children with visual impairment
Childhood visual disorders are usually diagnosed in the first year of life and can affect all areas of general development and learning, such as delaying reaching early milestones. The aims of this research study are to learn more about the early development of babies and young children with visual impairment, and also how different methods of early intervention and care might influence this early development.
You can find out more about the study by reading our Optimum VI flyer. If you interested in taking part, please fill out an Optimum VI expression of interest form.
Developmental outcome and seizure control in children with Sturge-Weber syndrome
There is an ongoing research and audit project in the Sturge-Weber Clinic in order to investigate the developmental outcome and seizure control in children with Sturge-Weber syndrome. This project intends to look for predictive factors that may influence medical treatment and appropriate management strategies. All families attending the clinic will be invited to take part, and will be given written information about the study.
Take a look at some of the following publications written by members of our team: