The Haemophilia Comprehensive Care Centre (CCC) at Great Ormond Street Hospital (GOSH) cares primarily for children with inherited bleeding disorders and some with thrombotic conditions.
How to refer to the Haemophilia Comprehensive Care Centre
Outpatient appointment
As a tertiary care hospital, all children who attend GOSH must be referred via local hospital consultants or community paediatricians.
Children can be also be referred to the CCC by local GPs and parents, if accompanied by a covering letter from the GP.
We accept referrals on any child who may have an inherited bleeding disorder including factor deficiencies or platelet disorders.
To make a referral to the CCC please phone 020 7829 8846/8837/7990 or fax 020 7829 8872.
During working hours please phone the CCC on 020 7829 8846.
Alternatively contact the GOSH switchboard on 020 7405 9200 and ask for Dr Liesner or Dr Mathias via mobile.
For out-of-hours referrals please contact the GOSH switchboard on 020 7405 9200 and ask for the on-call haematology/haemophilia registrar.
How to get advice
For patients known to GOSH
During working hours please phone the main nurses’ office on 020 7829 8846/7990 or reception on 020 7829 8837.
Out of hours please contact the GOSH switchboard on 020 7405 9200 and ask for the on-call haematology/haemophilia registrar.
GOSH patients can also use email to contact the team about non-urgent issues.
For patients not known to GOSH
During working hours please phone the main nurses’ office on 020 7829 8846/7990 or reception on 020 7829 8837.
Out of hours please contact the GOSH switchboard on 020 7405 9200 and ask for the on-call haematology/haemophilia registrar.
Key staff members
Consultants
Nursing staff
Other staff
Services and facilities available
GOSH has the largest CCC for children in the UK and one of the five largest in Europe. The complex nature of these lifelong disorders requires specialist medical and nursing care.
The CCC specialises in complications of haemophilia and other bleeding disorders, such as the management of inhibitors.
The CCC is the designated hub for the North Thames Paediatric Network but also receives referrals from other parts of South East England and further afield in the UK as well as children from Africa, the Middle East and the rest of Europe.
Our medical consultants are paediatric haematologists with special interests in haemostasis and thrombosis.
The parents and the children themselves are also partners in the care model of haemophilia management.
The GOSH CCC has a full diagnostic repertoire required to accurately diagnose bleeding disorders using relatively small volumes of blood.
These include both coagulation and platelet-based disorders at all ages of childhood, including young infants.
Care at GOSH
The CCC facilities include a stand alone outpatient clinical area and rooms with a resident physiotherapist as well as other members of the team.
Clinic times are Monday to Friday from 8am to 5.30pm and a standard haemophilia review appointment will include a review with the clinical staff, physio and dental team.
The CCC has a large stock of all the factor concentrates required to treat children with these disorders, though treatment for home use is delivered directly to the patients home.
Care at home
The children receive the majority of their treatment at home from a very early age, reducing the number of visits and the time spent in hospital.
Families are visited at home when required by the haemophilia nurse specialists who provide continuity and co-ordination of care for families. They also liaise with GPs, health visitors, community nurses, shared care hospitals and schools.
Feedback and suggestions
All general feedback and suggestions can be directed to:
Haemophilia Comprehensive Care Centre
Level 5, RLHIM
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH
020 7829 8846/7990/8837
Fax number: 020 7829 8872
Management contacts
Dr Ri Liesner
Haemophilia Centre Director
020 7405 9200 Ext 7937
Ri.Liesner@gosh.nhs.uk
Sarah Crawshaw
Service Manager
020 7405 9200 Ext 0255
Sarah.Crawshaw@gosh.nhs.uk
Carla Hobart
General Manager
020 7405 9200 Ext 1008
Carla.Hobart@gosh.nhs.uk
